Phenomenological Study of HIV Patients' Experiences of Care, Support and Treatment in Banda Aceh City
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Abstract
HIV is a chronic disease that affects not only physical health but also causes profound psychosocial stress. The Care, Support, and Treatment (CST) services are a comprehensive strategy provided to improve the quality of life of people living with HIV (PLHIV). However, the success of CST programs largely depends on how PLHIV perceive and experience these services in their daily lives. This study aims to deeply explore the lived experiences of people living with HIV in accessing CST services in Banda Aceh, focusing on their care experiences, forms of social and emotional support, and the dynamics they face in obtaining treatment. This study employed a qualitative approach with a phenomenological method. Six informants—including active PLHIV, outreach workers, CST officers, and health department staff—were selected purposively. Data were collected through in-depth interviews and observation, then analyzed thematically with the aid of NVivo 12 software to uncover the subjective meanings of their experiences. Three main themes emerged. First, the experience of receiving CST services revealed a sense of satisfaction with medical care, although some technical and emotional challenges were still present. Second, social and emotional support from family, healthcare providers, and community groups played a crucial role in strengthening psychological resilience. Third, in the treatment process, informants encountered challenges such as limited access, therapy side effects, and concerns about stigma, yet they demonstrated strong commitment to treatment adherence. This study emphasizes the need for a more humane, empathetic, and holistic approach to CST services. Sustainable social support, effective communication, and assurance of confidentiality are key elements in improving the quality of life of people living with HIV.
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